Episode #2 – Rob Long: All American Advocate

Big thanks to Rob Long​ from Uplifting Athletes​ for joining us on Episode #2. Hear his incredible story and learn more about the 2018 Young Investigator Draft taking place in Philadelphia August 18th- you don’t want to miss it!

Podcast: https://anchor.fm/rareunplugged/episodes/Episode-2-Rob-Long-All-American-Advocate-e1v84k

Young Investigator Draft: https://give.upliftingathletes.org/event/2018-young-investigator-draft/e182298

 

Episode #1 here we go

2 thoughts on “Episode #2 – Rob Long: All American Advocate

  1. Hi Anne,
    My daughter, who is 33 years old, was just diagnosed with Atypical HUS. She spent close to a month at the University of Utah hospital. She also has a rare kidney disease called FSGS. She is now on dialysis 3 times a week. I would love to be able to speak with you. I have a feeling you could shed some light on this disease for us. Thanks for your time💜

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    • I apologize for the slow response I was traveling tues/wed. Thank you for reaching out. I would be more than happy to talk to you and anyone in your family about this. My son was diagnosed almost 6 yrs ago and I recently stepped down as the director of the Atypical HUS Foundation. I would be happy to answer any questions. Please feel free to email me at annebruns@gmail.com and we can set up a visit or a call. Hang in there! Anne

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